[reblog] Exhaustion.

The Spoon Theory. This explains the answer to the question I never asked myself when I learned of the concept to “manage your energy, not your time”. I didn’t ask myself ‘how much energy do I have?’ You can’t manage what you can’t measure!

Like Amy here, I know when I have completely run out of spoons because the mental exhaustion hits me hard also. But what if I could pre-empt the onset of total exhaustion? That is a powerful thought.

I suppose the liberating aspect of understanding I am on the autism spectrum is that I can let go of ever believing I will have more spoons, and instead now focus on understanding how to manage better with what I have.

This is the first thing I want to work on after I get my diagnosis.

A is for ...

It’s amazing how little you know about yourself until you find out a big thing about yourself. As far back as I can remember I’ve put my hand up to help people. You need someone to help set up your function? What time? I’ll be there. Can’t pack everything away yourself? I’ll stay behind and help. You have a problem? Here, let me lose sleep so I can solve it for you. And on the list goes.

I like helping people, I do. I’m not resentful at all. I like to be useful. But it’s always come at a cost. I could never understand the exhaustion that followed. Why does floating around talking to people at a luncheon party, as an example, exhaust me? I’m not physically exerting myself!

But now, oh now, it makes sense. The constant barrage of questions and small talk, trying to stay “focused” on the…

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Thinker Temple Soldier Spy (Part 1 of 2)

I’ve been watching talks by Dr. Temple Grandin on YouTube. I have watched her talk “The Autistic Brain: Thinking Across the Spectrum” on the Talks by Google channel twice now and I am fascinated by how much I am learning about myself. She explains everything so, so well.

At around 13 minutes she introduces her most important slide, the ‘different kinds of minds’ slide:
Temple-Grandin-Individual-specialist-brain-autism-spectrum

Temple Grandin said she is the first one:
a Photo Realistic-Visual Thinking-Object Visualiser.

I have been thinking about this a lot, what type of thinker am I?

What type of thinker are you?

And have you read any of Temple Grandin’s books?

Continue reading “Thinker Temple Soldier Spy (Part 1 of 2)”

[reblog] Adults share how recognizing autism changed their lives

Very inspirational – or, as I like to say – ‘aspierational’ 😉

Just bought Samantha Craft’s book, Everyday Aspergers. 150 journal entries, 10 years in the making! The excerpts via her Twitter (@aspergersgirls) are so relatable! Buy it via Amazon

Everyday Aspie

Screen Shot 2016-05-20 at 11.27.33 AMYesterday, I asked community members at @Everyday Aspergers, “How has finding out you are or might be on the autism spectrum changed your life in a beneficial way?” And these were the responses.

Having ASD has enriched my life in many ways. ~ Kasey

I am an adult autistic diagnosis. The joy and excitement to discover and to tell my sisters: “See . . . I told you there was something wrong.” I have been able to have a reason for the bullying, emotional abuse and deliberate isolation. I have found a like-minded posse that first welcomed me, accepted me and support, advise and help me. I have finally achieved acceptance of myself and am trying to achieve heart mind centeredness. Something I thought was unachievable: loving myself. ~ John

Before I knew I was Autistic, I spent my whole life trying to fit in and do things that went against…

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Great Expectations

I am slowly making my way through the wonderful I Am Aspien Woman collection, created by Tania Marshall (@TaniaAMarshall)

I really admire everyone for taking part in this book, for having the courage to be so open about some really quite personal experiences, so that people like me who are new to this journey of self-discovery can feel safe reflecting on our own experiences within this new framework of neurodiverse understanding.

I say ‘slowly’, because every few pages I come across an experience/story that strikes such a chord with me, to the point that I cannot believe it’s not been written by me or someone who knows me. And this usually brings the waterworks as I feel such relief that there is a ‘thing’ to explain it all. And then – what feels like – every. single. memory from my own experiences related to that story appear in my mind’s eye, and I can’t keep up with them!

Take this story that I’ve highlighted, pictured:

I_am_Aspien_woman

“High expectations for [herself] and others”.
“Very hard on herself”.
“Doesn’t take criticism or feedback well, but the irony is she loves to dish it out to others” (my mum laughed out loud when I read this sentence to her).
“Plagued by negative thinking”.
“Too serious”.
“Described as ‘intense’ in everything she does”.
“Prone to burning out and ‘disappearing’ for a while”.

I have been told countless times that I have high expectations for myself and others. I suppose I have them for myself because I feel as though I am always catching up and learning something that I presume everyone else already knows (note to self: relate this to ‘theory of mind’ one day?) and I do not like to make mistakes, so I create systems and ways of operating in order to avoid errors as much as possible, in all aspects of my life. When I am on top of things it works, I feel good, and I like that. So that’s what I strive for, naturally.

In regards to others, I’ll admit it: I quite simply do not understand (for example) why some people have terrible attention to detail, for example, at work when one cannot spend an extra 10 seconds to re-read an email just written before hitting Send, so it is not sent with any mistakes to a customer (I’m not talking about spelling/grammar errors because I’ve had to come to realise over time that some people just do not remember the rules there or were never even taught in the first place or are dyslexic), or why some people do not want grow by learning more, doing more, being more, and challenging oneself. This has been particularly difficult for me to understand at work. However whilst I’m on that, in regards to work, on the whole I see my autistic traits that separate me there as an incredible gift, and a special ability that no one else has – not a disability at all. There will be plenty more reflection on work I’m sure!

I am aware that I can be very blunt sometimes (especially my parents) particularly if I am feeling frustrated or overwhelmed in some way and I get defensive in heated discussions. It’s because I do not think before I speak. It simply doesn’t occur to me to do so in the moment. And hours sometimes days afterwards, I realise I was way too honest, and that what I said wasn’t necessary at all, and I feel so frustrated for not remembering to remember to just. be. nice. Why is it so hard?! But in the moment I don’t remember, and I can’t think or do anything else until I have fixed my environment to the best of my ability. An example off the top of my head is that I will tell people close to me that their breath smells (and offer mints/gum to others- a bit more socially acceptable), or tell them that they need to go take a shower after their jog because they’re making the room smell. Why does it have to be about me all the time, and on my terms?

 

One of the only things that doesn’t fit for me from all the reading I have done on women with Autism Spectrum Disorder experiences, and it’s this that makes me worry that I might not get my diagnosis – I was not a problem child. I am very lucky to be able to say I had a fantastic childhood with a very lovely, loving family, and some very good friends over the years. And the opportunity for a brilliant education, which I took (with one repeated year however). I was shy, naive and inherently good. I’ve always respected authority and ‘the rules’, perhaps too much… I enjoyed my schools. I wanted friends, sought out new experiences and I make friends with all kinds of people.

But there is a lot that I do not understand. And it was getting to the point where I am thinking “I am almost 30 and I still can’t get this – this is embarrassing” and that I need a PA for my personal life! And though I have adapted fairly well, it is really liberating to know now that I could not have really done any better!

I wish I had known about autism for women and girls. It’s my immediate family that have experienced the brunt of this my whole life, behind closed doors, at home, where I felt emotionally safe to attempt to express myself (terrible as I am at that). I wish my two younger siblings had support from this knowledge growing up too, though. I fear I was not the best older sister I could have been to them 😦

 

I am a 29 year old newly-realised Aspien Woman
& welcome to my blog.

– L.G.